Friday, May 06, 2005

Camilla has developed rapid hydrocephalus. This is most likely a result of her IVH (intraventricular hemorrhage). Ordinarily the ventricles drain fluid into the spinal column and it is eventually reabsorbed by the body. IVH can cause this drain to get plugged, which causes the ventricles to swell, which puts pressure on her brain. Ordinarily this happens somewhat slowly over the course of weeks, but sometimes (and in Camilla's case), the swelling is faster. I first noticed this on Wednesday night, when her head size suddenly increased from 24cm (where it had been for some time) to 25.25 cm. This is a larger increase than should be seen in a week, let alone a day. Today they got the ultrasound results showing a significant increase in the size of the ventricles. She may need surgery to install a drain. This requires a pediatric neurosurgeon. They do not have one here at UNM, however both Stanford and UCSF do. Stanford does not have any room for her though, so she will be going to UCSF. The transport should take place on Saturday, though the plans are still in progress.

2 comments:

Aunt Joy said...

PAUL AND ARIL:
MY HEART IS BROKEN FOR YOU.
I WILL OFFER MY MASS UP THIS AFTERNOON FOR THE 3 OF YOU.
LOVE, AUNT JOY

Marie Lester said...

A former student of mine is the head of the neonatal unit at Stanford, Paul. I had hoped that Dr. Doug Jutte would be able to meet your precious bundle, but I am certain that she will receive great care at UCSF.
Our best wishes and prayers will continue to be sent your way. The miracle of life....
Fondly,
Marie Lester (Chad's mom)